Our son is affected by Tango2 mutation; we discovered about their condition in early 2017.

After the first shock, we decided to create this site to share information regarding this rare disease with the hope of helping not only our child but all children affected by Tango2 mutation.

This disease is so rare that it seems that before 2016 there were no patients diagnosed.

We understand that possible treatments of Tango2 would require a deeper understanding of Tango2 pathology, calibrated to those areas with therapeutic potential.

We are determined to accelerate a “cure” for Tango2 facilitating as much as possible researchers to be in contact each other and gathering financial resources to support the medical researches.

Child’s parents